EGM/HIV-AIDS /2000/OP 1
16 October 2000
Expert Group Meeting on
"The HIV/AIDS Pandemic and its Gender Implications"
Division for the Advancement of Women (DAW)
World Health Organization (WHO)
Joint United Nations Programme on HIV/AIDS (UNAIDS)
13-17 November 2000
Windhoek, Namibia
The Gender Aspects of the HIV/AIDS Pandemic
Stephen Matlin and Nancy Spence
Commonwealth Secretariat
London, United Kingdom
Introduction
HIV/AIDS continues to spread rapidly: among the 33.6 million cases of people living with the virus at the end of 1999, one in six were new infections acquired during the previous 12 months and there were 2.6 million deaths (including half a million children) that year. It now causes more deaths than any other infectious disease, having overtaken TB and malaria. It is the fourth biggest killer in the world (after heart disease, stroke and respiratory diseases) and has become the single largest cause of death in Africa.1
Across the world, there has been a changing pattern of male/female infections. Early cases in many countries were concentrated in male homosexuals and intravenous drug users, but as the epidemic has spread there has been a progressive shift towards heterosexual transmission and increasing infection rates in females. The reality today is that, globally, more women than men are now dying of HIV/AIDS, and the age patterns of infection are significantly different for the two sexes. 2
Beyond the statistics of sex-based differences in infection rates, there are profound differences in the underlying causes and consequences of HIV/AIDS infections in male and female, reflecting differences in biology, sexual behaviour, social attitudes and pressures, economic power and vulnerability.3 In many ways, the inequity that women and girls suffer as a result of HIV/AIDS serves as a barometer of their general status in society and the discrimination they encounter in all fields, including health, education and employment.
It is for these reasons that HIV/AIDS is inherently a gender-based issue and needs to be seen in this light if it is to be addressed effectively. HIV/AIDS will only be conquered when the effort to achieve gender equality is successful.
Gender analysis is crucial to understanding HIV/AIDS transmission and initiating appropriate programmes of action. Key to this is an understanding of the socially constructed aspects of male-female relations that underpin individual behaviour, as well as the gender-based rules, norms and laws governing the broader social and institutional context. Gender analysis forms the basis for the changes required to create an environment in which women and men can protect themselves and each other.
An important aspect of the effort to achieve gender equality in the relation to HIV/AIDS must be to pay close attention to the language which is used to characterise issues. All too often, the use of gendered language predetermines an attitude that blames or shames a specific group or sex and this need to be avoided:
HIV/AIDS and mother and child
Screening for HIV/AIDS of pregnant women attending antenatal clinics is becoming increasingly common, in part as a means of tracking the progress of the pandemic. Screening raises a number of serious human rights and ethical questions:
HIV/AIDS and education
In many countries with high HIV/AIDS prevalence rates, large numbers of teachers, administrators and other educational employees are becoming infected, with substantial impacts on the supply and quality of education. In addition, the consequences for the planning, administration and management of education are expected to be profound and strategies for the organisation of the sector will require substantial re-thinking. The epidemic is likely to result not only in losses of education personnel but also in significant reductions in government funding for education, as economies decline and the direct and indirect consequences of AIDS-related sickness and death create competing priorities for the available resources.4
At the same time, HIV/AIDS is also causing a substantial decline in the demand for education. Numerically, there will be far fewer children needing to be educated than was originally expected (over 25 percent less in some countries):
Overall, the available evidence indicates that HIV/AIDS is exacerbating the gender-based disparities that already exist in the education sector, which in most cases disadvantage girls in their access to quality education and disadvantage women in their employment opportunities as educators and administrators. As a result, many countries are likely to fail to meet the internationally agreed targets for gender equality in education and education for all.
Notwithstanding these unprecedented pressures, the education sector has particularly important roles to play in combating HIV/AIDS:
In all of these areas, gender is a critical factor and distinctly different approaches may be required to address the separate needs of girls and boys and to enable them to adopt the beliefs, attitudes and behaviours that will not only safeguard their immediate situation but contribute to a long-term social re-orientation that ultimately secures gender equality.
As well as giving emphasis to the positive roles that schools can play in helping learners and teachers to cope with the issue of HIV/AIDS, it is important to recognise that schools do not always represent safe environments, particularly for girls. A number of aspects of the school organisation and environment need to be addressed to reduce risk:
Safe transport to and from school for female pupils and teachers
Schools also have important roles to play as focal points for the community. Teachers, parent-teacher associations and governing bodies often command a degree of respect and authority that can be used to advantage in mobilising community action. Local strategies need to be developed that draw on these resources and supplement them by collaborations with NGOs - including womens organisations - and the private sector to mobilise action. This action can be used not only to support the school but also to ensure that information is disseminated widely in the community and that initiatives are taken to eliminate gender-based discrimination and inequality and create community solidarity in combating HIV/AIDS and mitigating its effects.
Similar considerations apply at the tertiary level of education. Evidence to date indicates that, in heavily affected countries, rates of HIV infection among students and staff in tertiary institutions are similar to those in the surrounding populations. This highlights the need for these institutions to be fully engaged, along with the rest of society, in combating the spread of infection and ameliorating its impact.
Tertiary institutions, and especially universities, have an ethical and intellectual responsibility to set an example by openly debating the issues and finding creative responses to the threat that is posed by HIV/AIDS. They constitute one of the essential components in developing a united and effective response to the HIV/AIDS pandemic because they have the capacity to:
Tertiary education institutions, including universities, polytechnics and specialised colleges of further education and training, have a primary duty to develop strategies to protect the lives of those in their sector who are not yet infected, and the human rights of all affected persons:
As is the case for schools, tertiary institutions represent concentrations of educated and respected citizens who can act as focal points for out-reach into the community - leading information campaigns, promoting behaviour change and galvanising action to mobilise resources from government and civil society. These institutions therefore have a crucial role to play in combating gender inequalities and discrimination in relation to those infected and affected by HIV/AIDS.
HIV/AIDS and youth
In many of the heavily affected countries, young people represent the most rapidly growing component of new HIV/AIDS infections, with girls outnumbering boys by a substantial factor. The reasons for this vulnerability include factors relating to poverty, lack of information, lack of economic and social empowerment, and lack of availability of protective methods. One of the most glaring deficiencies in many countries in the world is the complete absence of adolescent sexual and reproductive health services. Young people often find it difficult to get accurate and practical information on sexual matters from the parents, teachers or health professionals and are forced to rely on inaccurate or incomplete information circulating in peer groups.
At the 1995 International Conference on STD/AIDS in Kampala, a group of young Africans from 11 countries put forward a series of seven principles which they saw as essential for effective AIDS action:
Engaging youth in addressing the epidemic has become essential. With the addition of the appropriate gender-based analysis and perspective to each of the above priority areas, they provide a sound basis for a youth-centred approach to combating HIV/AIDS.
Initiatives such as the Commonwealth Youth Programmes Ambassadors for Positive Living have demonstrated that peer counselling, including that by young people living with HIV/AIDS, can have a power effect.
HIV/AIDS and the labour market
The rates of employment of women in the formal economy are generally lower than for men, since they are often engaged in subsistence farming as well as in their domestic and reproductive roles. However, recent data shows that women now comprise an increasing share of the worlds labour force at least one third in all regions except North Africa and Western Europe. In addition, the informal sector is a larger source of employment for women than for men and is growing.
Becoming seropositive often has a disproportionate economic impact on women compared with men. They are more likely to lose employment in the formal sector (in fact, self-employment can have positive advantages in resilience for women who become infected) and to suffer social ostracism and expulsion from their homes. When they are forced to become the main breadwinner due to their partner becoming infected, women lacking education and skills may be forced into hazardous occupations, including sex work, that further increase their vulnerability.
Positive strategies to assist women who are affected by HIV/AIDS might include the encouragement of informal sector entrepreneurship and micro-credits, as well as community action groups and social welfare support mechanisms.
HIV/AIDS and health services
It is now widely recognised that gender-based inequalities in the treatment of women and men permeate health systems in all parts of the world and this situation is mirrored in the specific area of HIV/AIDS. Examples can be found of gender biases in womens access to services for diagnosis, counselling and treatment; in the training of health professionals and their responses to patients; in the nature and focus of research into new drugs and treatments, including the greatly disproportionate use of men as research subjects to establish the pharmacological effects and efficacy of drugs.
Redressing these biases is not simple. Countries have been struggling for years with health sector reforms in response to a variety of external and internal forces, including structural adjustment, globalisation, economic contraction and shrinkage of state support for the social sector. In health systems that were previously fragile and are now being stretched far beyond their limits by the pandemic, the use of the meagre resources available in a cost-effective and equitable way requires a systematic and comprehensive new approach.
To look on the positive side, this very crisis in the health sector, which is demanding a major re-think about priorities, now affords the opportunity for a new approach built on principles of evidence-based treatment and services and equality of access.
The first step along this road must be the sensitisation of senior health planners, managers and service providers, to create a willing and supportive environment for the necessary reforms leading to gender equality in the health sector. Leading on from this must be action to ensure that women and girls have adequate access to sexual and reproductive health services and that there is equality in the provision of drugs for treating HIV/AIDS and opportunistic infections and of palliative care.
HIV/AIDS and the law
In many countries, women experience substantial discrimination in their legal status and treatment, compared with men. This may include diminished rights to hold, inherit or dispose of property, to participate in democratic processes, or to make decisions about marriage or about the education of their children.
HIV/AIDS is exacerbating the difficulties that women face, when they or their partner becomes HIV-positive, and may make it difficult for them to exercise their rights to their property, employment, marital status and security.
Strategies for action:
HIV/AIDS in situations of conflict and internal and external displacement of populations
Surveys in a number of countries have identified groups of soldiers with seropositive rates 2-3 times those of the general population. In some conflict zones this rises to 50 times the rate. In situations of conflict, the perpetration of sexual violence by soldiers on women and girls is therefore not only a criminal act but now also poses a very serious threat to life. Moreover, even in non-violent situations and where peace-keeping troops are deployed, consensual sex with soldiers may be engaged in by those who are hungry, dispossessed or concerned with the survival of their families and dependants.
Strategies for action:
Inserting gender in the multi-sectoral response to HIV/AIDS
HIV/AIDS was initially seen as a medical problem. However, recognition that the disease required a more broadly based response going beyond biomedical models resulted in the establishment of UNAIDS in 1996. More recently, the UNAIDS cosponsors and other partners have initiated an International Partnership on HIV/AIDS in Africa and the World Bank has launched its strategy on Intensifying Action Against HIV/AIDS in Africa. HIV/AIDS has also become a high priority issue for many of the bilateral donors.
The concept of a multi-sectoral and expanded response to HIV/AIDS is central to current strategies for combating the epidemic:
It is vital that, in developing and applying these multi-sectoral responses, the concept of gender is included at every stage. An understanding of the gender issues and dimensions of HIV/AIDS must be seen as central to all aspects of the analysis of causative and contributory factors and to the planning and execution of responses, whether aimed at prevention of transmission or mitigation of the impacts of the disease.
In short, gender must be mainstreamed into the multi-sectoral response to HIV/AIDS.
The implications of this statement are profound, because gender mainstreaming calls for skills in gender-based understanding, analysis and planning; capacities to collect, collate, analyse and interpret sex-disaggregated data; governmental and organisational commitments to action to achieve gender equality; and availability of human, technical and financial resources some or all of which may be in short supply in countries where they are needed most.
Therefore, as is the case for gender mainstreaming generally, the insertion of a gender-based approach into the multi-sectoral response to HIV/AIDS requires a systematic and comprehensive effort, involving:
Gender and HIV/AIDS: Roles for National Womens Machineries
As lead agents for mainstreaming gender, National Womens Machineries can play a number of key roles in supporting the national response to HIV/AIDS and in safeguarding the position of women.
Footnotes and references
1. Global HIV/AIDS statistics from UNAIDS, December 1999:
1999 1996
People newly infected with HIV | Total Adults Women Children <15 years |
5.6 million 5 million 2.3 million 570 000 |
3.1 million 2.7 million --- 400 000 |
People living with HIV/AIDS | Total Adults Women Children <15 years |
33.6 million 32.4 million 14.8 million 1.2 million |
22.6 million 21.8 million 9.2 million 830 000 |
AIDS deaths in year | Total Adults Women Children <15 years |
2.6 million 2.1 million 1.1 million 470 000 |
1.5 million 1.1 million 470 000 350 000 |
Total AIDS deaths since the beginning of the epidemic | Total Adults Women Children <15 years |
16.3 million 12.7 million 6.2 million 3.6 million |
6.4 million 5.0 million 2.1 million 1.4 million |
Against this global background, sub-Saharan Africa is the most heavily affected region, now accounting for about 70 percent of the global disease burden, two thirds of new infections and four-fifths of HIV/AIDS-related deaths. The 21 countries with the highest HIV prevalence are all in Africa. The epidemic is most heavily concentrated in East, Central and Southern Africa, where infection rates in the sexually active population now typically exceed 15 percent, but West Africa is also beginning to show substantial increases. In Zimbabwe and Botswana, one in four adults is infected. In at least ten other African countries, prevalence rates exceed ten percent. The bulk of new HIV/AIDS infections are seen in the 15-25 age group, with females accounting for more than half of these. The next most heavily infected region is the Caribbean, where HIV rates have recently escalated dramatically, but other regions including the former Soviet Union countries and South Asia are also showing worrying trends.
Regional HIV/AIDS statistics on people living with AIDS in 1998, using 1997 population numbers: data from UNAIDS/WHO, December 1999:
Region | Adults and children living with HIV/AIDS |
Adults and children newly infected with HIV/AIDS |
Adult prevalence rate % |
% of HIV-positive that are female % |
Sub-Saharan Africa | 23.3 million |
3.8 million |
8.0 |
55 |
North Africa & Middle East | 220,000 |
19,000 |
0.13 |
20 |
South Asia & South-East Asia | 6 million |
1.3 million |
0.69 |
30 |
East Asia & Pacific | 530,000 |
120,000 |
0.068 |
15 |
Latin America | 1.3 million |
150,000 |
0.57 |
20 |
Caribbean | 360,000 |
57,000 |
1.96 |
35 |
Eastern Europe & Central Asia | 360,000 |
96,000 |
0.14 |
20 |
Western Europe | 520,000 |
30,000 |
0.25 |
20 |
North America | 920,000 |
44,000 |
0.56 |
20 |
Australia & New Zealand | 12,000 |
500 |
0.1 |
10 |
TOTAL |
33.6 million |
5.6 million |
1.1 |
46 |
Of the 33.6 million people living with HIV/AIDS at the end of 1999, 46% were women; 50% of the new 16,000 infections/day were female; half of the 12.7 million people who died of AIDS since the beginning of the epidemic were women; 52% of the 2.1 million adults who died from the disease in 1999 were women. In sub-Saharan Africa, women now account for 55% of those living with HIV/AIDS, and the ratio of female/male infections in younger age groups reaches 16:1 in some places.
3. Womens vulnerability to HIV/AIDS is greater than mens because:
4. Examples of impact of HIV/AIDS on education:
5. Sex education: Surveys suggest that there are still no sex education policies to inform the development of comprehensive sex education programmes in many countries and that sex education in schools is left to the discretion of education authorities. At the same time, children are exposed to mass media at an early age and may obtain inappropriate information from various sources. The lesson of experience has been that awareness alone does not necessarily reduce risk-taking behaviour and more sophisticated approaches are needed that are based in an understanding of all the factors that determine behaviour change. A variety of education-based approaches have been initiated, including: